Collaborative Formed to Further Research of EGIDs. Thanks to federal funding, the Consortium of Eosinophilic Gastrointestinal Disease Researchers (CEGIR) was formed to study these diseases.
CEGIR is a collaborative effort and operates under the umbrella of the Rare Diseases Clinical Research Network (RDCRN). Scientists, health care providers, patient advocacy groups, and professional organizations are all working together to improve diagnostics and treatments for people who have eosinophilic gastrointestinal diseases (EGIDs), and to teach other researchers and clinicians about these diseases.
CEGIR is… Patient-centered: The consortium works closely with patients, the EFC and other patient advocacy groups to ensure that efforts are guided by meaningful input from those who live with EGIDs. Patient-powered: Effective, improved treatments and a cure for EGIDs cannot be found without the active participation of patients who have these diseases. By participating in surveys and/or clinical trials, you will have an active role in advancing disease research.
How Can You Get Involved?
Enroll in the RDCRN Contact Registry: The RDCRN Contact Registry is used by CEGIR to help communicate information about clinical trials that the consortium is conducting. Patients and caregivers are invited to register and participate in online studies/surveys that provide researchers with important disease-specific information.
Enroll in clinical trials: CEGIR is launching new clinical trials and is currently enrolling patients. Our best hope for improved diagnostic tools/treatments is for patients to become involved in these studies. If you are eligible for a clinical trial, please consider participating. The CEGIR website will be updated with new information about their trials as they open for enrollment.
Spread the word: Encourage other families living with EGIDs to enroll in the Contact Registry and become active in research opportunities. The more patients who provide information to researchers, the further down the path to a cure we’ll go!
We invite you to learn more about CEGIR at rdcrn.org/cegir, and get started today.